Weight Loss in Dementia: Why It Happens and What Can Help
Many people with dementia lose weight, sometimes even before diagnosis. Here are the common reasons, the warning signs to report, and practical ways to help someone eat well.
Short answer: weight loss is common in dementia. The Alzheimer's Society lists causes including forgetting to eat, trouble chewing or swallowing, mouth pain, depression, tiredness, medicines and restlessness. One study found weight loss sped up about a year before an Alzheimer's diagnosis. The NHS says losing 5% to 10% of body weight over 3 to 6 months without trying is a main sign of malnutrition, so tell the doctor about any unplanned weight loss.
You notice your dad's belt is on a new notch. His face looks thinner. He says he's eating fine, but the food you left in the fridge is untouched.
Weight loss is one of the most common and worrying changes in dementia. It's often fixable, at least in part, once you know the cause.
This page is general information, not medical advice. Unplanned weight loss should always be checked by a doctor, because it can have causes that have nothing to do with dementia.
How common is it?
The Alzheimer's Association notes that, as the disease progresses, loss of appetite and weight loss may become concerns. The Alzheimer's Society says some people with dementia lose interest in meals while others eat more than before.
Weight loss can start early. A 2006 study from Washington University followed 449 older adults without dementia for about six years. Those who did not develop dementia lost about 0.6 lb a year. Among those who went on to develop Alzheimer's, the rate of weight loss doubled to about 1.2 lb a year in the year before diagnosis. The authors suggested weight loss may be an early sign in some people, though the exact reasons were unknown.
Why people with dementia lose weight
The Alzheimer's Society describes many possible reasons. Often there's more than one.
- Forgetting to eat, or forgetting how to prepare food.
- Problems with chewing and swallowing. These become more common as dementia progresses. See Swallowing Problems (Dysphagia) in Dementia.
- Mouth pain. Sore gums, painful teeth or badly fitting dentures can make eating hurt. See Dental and Mouth Care for Someone with Dementia.
- Constipation, which can make people feel too full or uncomfortable to eat.
- Depression, which is common in dementia and can reduce appetite. See Depression and Memory ("Pseudodementia").
- Communication barriers. The person may not be able to say they're hungry, that they dislike the food, or that it's too hot.
- Tiredness and poor concentration, so they give up partway through a meal.
- Medicines. Changes in medication or dose can affect appetite.
- Restlessness. Someone who walks about a lot may burn extra calories. See Wandering.
- Not recognizing food, or being unsure what to do with it.
Low activity can also matter. The Alzheimer's Society notes that people who aren't active during the day may simply not feel hungry.
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Why it matters
The Alzheimer's Society says not eating enough can lead to weight loss, less muscle strength, tiredness and weakness. That can make a person frailer and less able to recover from infections. The NHS adds that malnutrition can make people feel weak, tired and get ill more often.
Warning signs to report
The NHS lists these common signs of malnutrition:
- Unplanned weight loss, especially 5% to 10% or more over 3 to 6 months
- Low body weight (a BMI under 18.5)
- Lack of interest in eating and drinking
- Feeling tired or weak all the time
- Getting ill often and taking a long time to recover
Also watch for clothes, rings or dentures becoming loose. If you can, weigh the person regularly on the same scale and write it down. A record is very helpful at appointments.
Practical ways to help
These ideas come from the Alzheimer's Society and the Alzheimer's Association. Not all will suit everyone, so try a few and see what works.
Make food easy and appealing
- Serve small, regular portions instead of big plates. Half portions keep hot food from going cold.
- Offer foods the person likes, but remember tastes can change. Many people come to prefer sweeter foods.
- Use smells to spark appetite, such as baking bread or cooking a favorite meal.
- Try different textures and temperatures, such as milkshakes or soft foods.
- Offer finger foods and snacks, like sandwiches, slices of fruit or vegetables, for people who won't sit for a full meal.
Make mealtimes calm
- Wait until the person is calm before offering food. Don't put pressure on them.
- Eat together when you can. Talking about favorite childhood foods can help.
- Offer food when they're most alert. If they're awake at night, a night-time snack may help.
- Give gentle reminders to eat and say what the food is.
- If they refuse, try again a little later.
Ask about extras
- The Alzheimer's Association says the doctor may suggest supplements between meals to add calories. Ask before using them.
- Offer drinks throughout the day. Thirst can look like poor appetite, and dehydration is common. See Dehydration and Dementia: Signs, Risks and How to Help Someone Drink More.
For more mealtime ideas, see Eating, Drinking and Nutrition.
What the doctor or care team can do
The doctor can look for treatable causes, such as dental problems, depression, constipation, infection or medicine side effects. The NHS says a GP can check for malnutrition by measuring weight and height and asking about recent changes. The Alzheimer's Society notes a GP can refer to a dietitian, a speech and language therapist for swallowing problems, or an occupational therapist. Don't change or stop any medicine on your own.
In the late stages of dementia, eating less is often part of the illness itself. If you're facing that, talk with the care team about goals and comfort. See Late-Stage Dementia and Hospice and End-of-Life Care.
Common questions
Why is my mom with dementia losing weight?
There are many possible reasons, often more than one. The Alzheimer's Society lists forgetting to eat, chewing or swallowing problems, mouth pain, constipation, depression, tiredness, medicines and restlessness. A doctor can help find the cause.
Is weight loss an early sign of dementia?
It can be in some people. A 2006 study found weight loss sped up about a year before an Alzheimer's diagnosis. But weight loss has many causes, so it's not a test for dementia. Always have unplanned weight loss checked.
How much weight loss is too much?
The NHS says losing 5% to 10% or more of your weight over 3 to 6 months without trying is one of the main signs of malnutrition. Any unplanned weight loss is worth mentioning to the doctor.
How can I get someone with dementia to eat more?
Try small, frequent portions, favorite foods, finger foods, calm mealtimes and eating together. Offer drinks often. Ask the doctor about supplements and whether a dietitian or swallowing assessment would help.
The bottom line
Weight loss in dementia is common, but it's not something to just accept. Weigh regularly, watch for warning signs, make food easy and appealing, and ask the doctor to look for causes that can be treated.
Sources
- Alzheimer's Society: Appetite and dementia
- Alzheimer's Society: Eating and drinking
- Alzheimer's Association: Food and eating
- NHS: Malnutrition
- Archives of Neurology (2006): Johnson DK, Wilkins CH, Morris JC, Accelerated weight loss may precede diagnosis in Alzheimer disease (PubMed 16966511)
Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.
Related articles
- Eating, Drinking and Nutrition
- Swallowing Problems (Dysphagia) in Dementia
- Dental and Mouth Care for Someone with Dementia
- Dehydration and Dementia: Signs, Risks and How to Help Someone Drink More
- Depression and Memory ("Pseudodementia")
- Late-Stage Dementia
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