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Swallowing Problems (Dysphagia) in Dementia

Trouble chewing and swallowing becomes common as dementia progresses and can lead to choking, weight loss and pneumonia; learn the warning signs, how a swallowing evaluation works, safer eating tips, and the facts about feeding tubes.

By Jim Pavlish, Editor · Last updated: · Editorial policy

Swallowing seems automatic, but it takes careful coordination between the brain and dozens of muscles in the mouth and throat. As dementia progresses, that coordination can break down. Doctors call swallowing difficulty dysphagia. It becomes more common in the middle and especially the late stage of dementia, though some types, such as Parkinson's disease dementia, Lewy body dementia and vascular dementia after a stroke, can bring it on earlier.

Why it matters

When swallowing goes wrong, food or liquid can "go down the wrong way" into the airway. This is called aspiration. It can cause choking and aspiration pneumonia, a lung infection that is one of the most common serious illnesses in late-stage dementia. Swallowing trouble can also lead to dehydration, weight loss, and long, stressful mealtimes.

Warning signs

Watch for:

Some changes have other causes worth checking first: sore teeth or poorly fitting dentures, mouth sores, constipation, depression, or medications that cause a dry mouth or drowsiness (see Recognizing Pain in Dementia).

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Getting a swallowing evaluation

If you notice these signs, ask the doctor for a referral to a speech-language pathologist (SLP), the specialist who assesses and treats swallowing. According to the NIDCD, evaluation may include watching the person eat and drink, and sometimes an X-ray swallow study or a small camera passed through the nose to see the throat. The SLP can recommend safer food textures, drink thickness, positions and techniques.

Safer eating tips

The Alzheimer's Association also suggests finger foods for people who struggle with utensils, and offering one food at a time if a full plate is overwhelming (see Eating, Drinking and Nutrition).

Feeding tubes in advanced dementia

When eating becomes very difficult, families may be asked about a feeding tube. This is a deeply personal decision, and it helps to know what the research shows. The American Geriatrics Society recommends against feeding tubes for older adults with advanced dementia. Its position statement says that careful hand feeding is at least as good as tube feeding for the outcomes of death, aspiration pneumonia, function and comfort, while tubes can bring agitation, the use of restraints, and complications. Hand feeding also keeps the human contact of mealtimes.

In late-stage dementia, eating less is often part of the illness itself rather than a separate problem that can be fixed. Many families find it helps to shift the goal to comfort feeding: offering favorite foods and sips for pleasure, as long as they're enjoyed. This is a good time to talk with the care team about goals of care, advance directives, and hospice (see Hospice and End-of-Life Care).

When to get urgent help

Call 911 if someone is choking and can't cough, speak or breathe. Call the doctor promptly for fever, fast or labored breathing, or a new cough after eating, which can signal aspiration pneumonia.

This article is general information, not medical advice. Ask the person's doctor and a speech-language pathologist for guidance specific to them.

Sources

  1. National Institute on Deafness and Other Communication Disorders (NIDCD): Dysphagia
  2. Alzheimer's Association: Food and Eating
  3. American Geriatrics Society Ethics Committee and Clinical Practice and Models of Care Committee. American Geriatrics Society feeding tubes in advanced dementia position statement. Journal of the American Geriatrics Society, 2014

Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.

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