Swallowing Problems (Dysphagia) in Dementia
Trouble chewing and swallowing becomes common as dementia progresses and can lead to choking, weight loss and pneumonia; learn the warning signs, how a swallowing evaluation works, safer eating tips, and the facts about feeding tubes.
Swallowing seems automatic, but it takes careful coordination between the brain and dozens of muscles in the mouth and throat. As dementia progresses, that coordination can break down. Doctors call swallowing difficulty dysphagia. It becomes more common in the middle and especially the late stage of dementia, though some types, such as Parkinson's disease dementia, Lewy body dementia and vascular dementia after a stroke, can bring it on earlier.
Why it matters
When swallowing goes wrong, food or liquid can "go down the wrong way" into the airway. This is called aspiration. It can cause choking and aspiration pneumonia, a lung infection that is one of the most common serious illnesses in late-stage dementia. Swallowing trouble can also lead to dehydration, weight loss, and long, stressful mealtimes.
Warning signs
Watch for:
- Coughing, throat clearing or choking during or right after eating or drinking
- A wet or gurgly voice after swallowing
- Holding food in the mouth or "pocketing" it in the cheeks
- Chewing for a very long time, or forgetting to swallow
- Food or drink leaking from the mouth
- Refusing food, turning away, or taking much longer to finish meals
- Unexplained weight loss, or repeated chest infections or fevers
Some changes have other causes worth checking first: sore teeth or poorly fitting dentures, mouth sores, constipation, depression, or medications that cause a dry mouth or drowsiness (see Recognizing Pain in Dementia).
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Getting a swallowing evaluation
If you notice these signs, ask the doctor for a referral to a speech-language pathologist (SLP), the specialist who assesses and treats swallowing. According to the NIDCD, evaluation may include watching the person eat and drink, and sometimes an X-ray swallow study or a small camera passed through the nose to see the throat. The SLP can recommend safer food textures, drink thickness, positions and techniques.
Safer eating tips
- Sit fully upright for meals, and stay upright for about 30 minutes afterward.
- Make mealtimes calm. Turn off the TV, keep the table simple, and allow plenty of time. Rushing raises the risk of choking.
- Offer small bites and sips, and wait until each one is swallowed.
- Use simple cues: "Chew... now swallow." Gently stroking downward under the chin can prompt a swallow for some people.
- Adjust textures if advised: soft, moist, minced or pureed foods, and thickened liquids if the SLP recommends them. Don't change textures without guidance, since the wrong thickness can make things worse.
- Avoid high-risk foods: dry or crumbly foods, nuts, popcorn, tough meat, and foods with mixed textures such as soup with chunks or cereal with milk.
- Keep the mouth clean. Good oral care, including brushing teeth and dentures daily, lowers the bacteria that can cause pneumonia if aspirated.
- Check medicines. Ask the pharmacist which pills can be crushed or come in liquid form. Some must not be crushed.
The Alzheimer's Association also suggests finger foods for people who struggle with utensils, and offering one food at a time if a full plate is overwhelming (see Eating, Drinking and Nutrition).
Feeding tubes in advanced dementia
When eating becomes very difficult, families may be asked about a feeding tube. This is a deeply personal decision, and it helps to know what the research shows. The American Geriatrics Society recommends against feeding tubes for older adults with advanced dementia. Its position statement says that careful hand feeding is at least as good as tube feeding for the outcomes of death, aspiration pneumonia, function and comfort, while tubes can bring agitation, the use of restraints, and complications. Hand feeding also keeps the human contact of mealtimes.
In late-stage dementia, eating less is often part of the illness itself rather than a separate problem that can be fixed. Many families find it helps to shift the goal to comfort feeding: offering favorite foods and sips for pleasure, as long as they're enjoyed. This is a good time to talk with the care team about goals of care, advance directives, and hospice (see Hospice and End-of-Life Care).
When to get urgent help
Call 911 if someone is choking and can't cough, speak or breathe. Call the doctor promptly for fever, fast or labored breathing, or a new cough after eating, which can signal aspiration pneumonia.
This article is general information, not medical advice. Ask the person's doctor and a speech-language pathologist for guidance specific to them.
Sources
- National Institute on Deafness and Other Communication Disorders (NIDCD): Dysphagia
- Alzheimer's Association: Food and Eating
- American Geriatrics Society Ethics Committee and Clinical Practice and Models of Care Committee. American Geriatrics Society feeding tubes in advanced dementia position statement. Journal of the American Geriatrics Society, 2014
Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.
Related articles
- Eating, Drinking and Nutrition
- Late-Stage Dementia
- Hospice and End-of-Life Care
- Recognizing Pain in Dementia
- Hospital Stays and Dementia
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