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Shadowing: When Someone With Dementia Follows You Everywhere

Many people with dementia follow a caregiver from room to room and get upset when that person is out of sight. Here's why shadowing happens, practical ways to ease it, and how to get the breaks you need.

By Jim Pavlish, Editor · Last updated: · Editorial policy

You step into the kitchen, and they follow. You go to the bathroom, and they're waiting outside the door, or knocking. You step outside for the mail and come back to find them anxious and calling for you. This is called shadowing, and it's one of the most common, and most exhausting, behaviors caregivers describe.

This page is general information, not medical advice. If shadowing comes with new or severe anxiety, fear, or a sudden change in behavior, talk to the person's doctor.

Why it happens

Shadowing is usually driven by anxiety and insecurity, not by a wish to annoy you. Dementia Australia explains that the person may feel unsafe or uncomfortable in their surroundings.

As dementia progresses, the tools we all use to stay oriented, like remembering what just happened, checking a calendar or knowing what comes next, stop working. The world can feel confusing and scary. A trusted caregiver becomes the person's anchor. Keeping you in sight is how they feel safe. Some people also lose track of time, so five minutes apart can feel like hours, or they may not remember that you'll come back.

Shadowing often goes along with Repetitive Questions and Behaviors ("Where are we going? When are we leaving?") and can get worse late in the day (Sundowning), in new places, or when routines change. It is especially common with a spouse or the main caregiver.

What can help

Look for the trigger. Does it happen at certain times of day, after a nap, when visitors leave, or when the house is busy or noisy? Is the person bored, hungry, in pain or needing the toilet? Keeping a few days of notes can reveal a pattern.

Stay calm and reassuring. It's hard, but showing irritation tends to make the person feel even less safe, and the shadowing worse. A calm voice, a smile, and, if they welcome it, a hug or a hand on the shoulder can tell them they're safe.

Keep a predictable routine. When the day follows the same pattern, there's less to worry about. Dementia Australia suggests putting the day's plan on a noticeboard or whiteboard. A large clock that shows the day and whether it's morning or afternoon can help too.

Give them something to do near you. A simple, familiar task can turn following into helping: folding towels, sorting socks or silverware, wiping the table, stirring a bowl, or looking through a photo album while you cook. Music they love can be calming. See Activities for People with Dementia for more ideas.

Tell them where you're going, simply. "I'm going to the bathroom. I'll be right back." For some people, a note in large letters on the table ("Jane is in the garden. Back soon.") helps. Others find it reassuring to hear your voice, so talk or hum while you're in the next room.

Try a short recording. Some families record a short, calm message ("Hi Dad, it's Jane. I'm just out for a bit. You're safe at home.") or a favorite song to play while they're out of sight. This doesn't work for everyone, but it's worth a try.

Use comfort objects. A soft blanket, a familiar sweater or a stuffed animal or doll can give some people a sense of security (more on doll therapy: when it helps and how to do it respectfully).

Check for anxiety, depression and pain. If anxiety seems constant or severe, mention it to the doctor. Pain, poor sleep, infections and medication side effects can all increase restlessness and clinginess. Our page on Anxiety in Dementia: Signs, Causes and How to Help covers this in more depth. Medicines are generally a last resort for behavior symptoms, after other approaches have been tried.

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Getting space for yourself

Being followed all day can leave you feeling trapped, with no privacy at all. Needing space doesn't make you a bad caregiver; it's what keeps you going.

If shadowing is putting the person at risk, for example, if they try to follow you out the door and get lost, read our guide to Wandering and home safety.

In the US, the Alzheimer's Association 24/7 Helpline (800-272-3900) can talk through shadowing and other behaviors with you, free of charge.

The bottom line

Shadowing is a sign that the person feels unsafe and sees you as their anchor. Reassurance, a steady routine and simple activities near you can ease it, and regular breaks help you keep your patience. If anxiety is severe or behavior changes suddenly, talk to the doctor.

Sources

  1. Dementia Australia: Shadowing
  2. Alzheimer's Association: Anxiety & Agitation
  3. Alzheimer's Association California Central Chapter: The Light Beyond the Shadowing (Dementia Care newsletter no. 39, archived copy)
  4. Alzheimer's Association: Respite Care

Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.

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