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When a Person with Dementia Refuses Help

Many people with memory problems refuse a doctor visit, in-home help, bathing or giving up the car. Here's why refusal happens, how to lower the resistance without arguing, and when to get outside help.

By Jim Pavlish, Editor · Last updated: · Editorial policy

"I don't need a doctor." "I'm not having strangers in my house." "There's nothing wrong with my driving." If you're caring for a parent or partner with memory problems, you've probably heard something like this. Refusing help is one of the most common and most exhausting parts of dementia caregiving. It helps to know that it usually isn't stubbornness for its own sake, and that a different approach often works better than a stronger argument.

This page is general information for families. For a safety emergency, call 911. For advice about a specific person, talk with their doctor or a local aging services agency.

Why people refuse

Approaches that often help

Skip the argument. Trying to prove that the person has memory loss rarely works and usually leads to anger. You don't need them to agree that they're ill to get them the help they need.

Lead with what they value. Many families have better luck framing help around something the person cares about: "The doctor wants to check your blood pressure," "This helper is here to make my life easier," or "Your insurance covers a yearly wellness visit." Keep explanations short and honest in spirit.

Offer simple choices, not yes-or-no questions. "Would you like your shower before breakfast or after?" works better than "Do you want a shower?"

Pick the moment. Many people are more cooperative at a certain time of day, often the morning. Try again later if the first attempt goes badly; a "no" at 4 p.m. may be a "sure" the next morning.

Start small. Introduce an aide as a "friend" who visits for coffee before they help with anything personal. Begin adult day programs with a short visit. Add a little help at a time.

Use a trusted messenger. Sometimes the advice lands better from a doctor, a faith leader, an old friend or a grandchild than from a spouse or adult child. You can call or write to the doctor ahead of an appointment to share your concerns privately (see Preparing for a Memory Appointment).

Watch your tone and body language. Calm, slow speech and a gentle touch can lower resistance. Our pages on Communicating with Someone with Dementia and What Not to Say to Someone with Dementia (and What to Say Instead) have more ideas.

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Common situations

When it's a safety issue

Some situations can't wait for gentle persuasion: leaving the stove on, getting lost, unsafe driving, unpaid bills that threaten the home, or signs of abuse or neglect. In those cases, you may need the person's doctor, an elder law attorney or your local Adult Protective Services or Area Agency on Aging. If the person can no longer make safe decisions and there is no power of attorney, a lawyer can explain the options in your state.

Take care of yourself, too

Being told no again and again is draining, and it's normal to feel frustrated. Support groups and the Alzheimer's Association's 24/7 Helpline (1-800-272-3900) can help you talk through a specific situation. See Caregiver Stress and Burnout and Finding a Support Group.

Sources

  1. Alzheimer's Association: Communication and Alzheimer's
  2. Family Caregiver Alliance: Caregiver's Guide to Understanding Dementia Behaviors
  3. National Institute on Aging: Alzheimer's Caregiving: Managing Personality and Behavior Changes
  4. Alzheimer's Association: Anxiety and Agitation

Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.

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