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In-Home Care for Dementia: Types, Costs and How to Hire Help

In-home help can let a person with dementia stay at home longer and give family caregivers a break; learn the difference between companion care, personal care and home health, what Medicare does and doesn't cover, and how to hire and work with a caregiver.

By Jim Pavlish, Editor · Last updated: · Editorial policy

Most people with dementia live at home, and most of their care comes from family. As needs grow, paid help at home can fill gaps: a few hours a week so you can work or rest, help with bathing, or someone overnight. Knowing the types of in-home care, and what each costs and covers, makes it easier to get the right help before you're exhausted.

Types of in-home care

What Medicare covers, and what it doesn't

This surprises many families. Original Medicare covers home health care (part-time skilled nursing and therapy) when a doctor certifies that the person is homebound and needs skilled care under a plan of care. It does not pay for 24-hour care, or for companion or personal care alone when that's the only help needed. Most ongoing dementia care at home falls into that second group.

Other ways families pay:

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Agency or independent caregiver?

Hiring through an agency usually costs more per hour, but the agency handles screening, background checks, training, payroll taxes and insurance, and sends a substitute when the regular aide is sick. Ask whether aides have dementia training.

Hiring someone directly (for example, through a referral) can cost less and give you more choice, but you become the employer. That can mean checking references and background yourself, handling taxes and possibly workers' compensation, and finding backup. The Family Caregiver Alliance's guide walks through these steps.

Questions to ask before hiring

Helping the first weeks go well

Many people with dementia resist "a stranger in the house." These steps often help:

When home care is no longer enough

In-home care can work for years. It may stop being enough when the person needs two people to move safely, needs supervision around the clock that you can't arrange or afford, or when the caregiver's own health is suffering. Exploring options early is not giving up (see Choosing Memory Care or a Nursing Home and Caregiver Guilt: Why It Happens and How to Ease It).

Where to start

Call your local Area Agency on Aging through the Eldercare Locator (800-677-1116 or eldercare.acl.gov), or the Alzheimer's Association Helpline (800-272-3900), and ask what in-home programs exist near you. If a hospital stay is ending, ask the discharge planner whether Medicare home health is an option.

This article is general information, not legal, financial or medical advice. Coverage rules change; check with Medicare, your state Medicaid office or the insurer for the person's situation.

Sources

  1. Alzheimer's Association: In-Home Care
  2. Family Caregiver Alliance: Hiring In-Home Help
  3. Medicare.gov: Home health services
  4. Administration for Community Living: Eldercare Locator
  5. CareScout: Cost of Long Term Care by State, Cost of Care Report

Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.

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