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Apathy in Dementia: When Someone Loses Interest and Motivation

Apathy, a loss of motivation and interest, is one of the most common changes in dementia. Here's how it differs from depression and laziness, why it happens, and gentle ways to help someone stay engaged.

By Jim Pavlish, Editor · Last updated: · Editorial policy

Short answer: when someone with dementia loses interest in everything, it's often apathy, a loss of motivation caused by the disease, not laziness or a choice. The Alzheimer's Society says most people with dementia develop it, especially in the later stage. It overlaps with depression, so ask the doctor to check. Simple routines, achievable activities and doing things together help most.

Your mother used to garden every morning. Now she sits in her chair most of the day and says she's "fine." Your husband, once the life of the party, barely joins conversations. He doesn't seem sad, exactly. He just doesn't seem to care.

This is often apathy, and it's one of the most common changes in dementia. It can be very hard to watch, and it can feel like you're losing the person. Understanding it can make it easier to help, and easier not to take it personally.

This page is general information, not medical advice. Talk to the person's doctor about any new or worrying change.

What is apathy?

Apathy is a loss of motivation or drive. An international group of researchers writing in Alzheimer's & Dementia in 2017 described it primarily as a loss of motivation and decreased interest in daily activities, and noted that it's common in Alzheimer's disease and even in mild cognitive impairment.

The Alzheimer's Society says a person with apathy may need a lot of encouragement just to do small things, and without that support they may do nothing at all. Some people describe it as the person appearing to "give up" or withdraw into a shell. The Society says most people with dementia will develop apathy, particularly in the later stage.

Signs of apathy

According to the Alzheimer's Society, a person with apathy may:

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Apathy, depression or "laziness"?

Apathy is not laziness. The Alzheimer's Society is clear that apathy is not a conscious choice, and it advises families not to blame the person for being lazy, unhelpful or uncaring.

Apathy and depression overlap but aren't the same. Both can involve losing interest and lacking energy, which is why even doctors can find them hard to tell apart. The Alzheimer's Society says the main difference is that depression involves more negative feelings, such as sadness or guilt. A person with apathy often isn't troubled by it at all.

The difference matters, because depression can often be treated. If the person seems sad, tearful, hopeless or guilty, or if you're not sure, ask the doctor to assess them. See Depression and Memory ("Pseudodementia") and Anxiety in Dementia: Signs, Causes and How to Help.

Why does it happen?

The Alzheimer's Society describes two main reasons:

  1. An emotional response to struggling. Dementia makes everyday tasks harder, and things often go wrong. That can knock a person's confidence and leave them feeling ashamed or embarrassed. A natural reaction is to stop trying and let others take over. That feels safer, but it can lead to more isolation and less activity. The NHS similarly describes loss of self-confidence in dementia that can show up as apathy, noting the person may still be interested in an activity but worry they won't cope.
  2. Changes in the brain. Damage to parts of the brain involved in motivation can stop the person from starting a task, or make it hard to keep going once they've started.

Apathy is most common later in dementia, but the Alzheimer's Society notes it can appear much earlier in some types, including frontotemporal dementia, dementia with Lewy bodies and Parkinson's disease dementia. See Frontotemporal Dementia and Lewy Body Dementia.

Is there a treatment?

The Alzheimer's Society says apathy is very difficult to treat with medicines or talking therapies. A 2018 Cochrane review of drug studies for apathy in Alzheimer's found that no therapies had been proven to treat it. One stimulant medicine showed a possible small benefit, but the evidence was low quality and more research was needed.

The Alzheimer's Society also notes there isn't much evidence that antidepressants help apathy in Alzheimer's, mixed or vascular dementia, and some evidence they may make it worse. That's why the focus is usually on support and activity rather than pills. Any question about medicines, including whether a current medicine might be adding to the problem, is one to raise with the doctor. Don't start, stop or change medicines on your own.

Structured therapies delivered by trained professionals, such as music therapy, group art therapy, reminiscence and cognitive stimulation, may help, according to the Alzheimer's Society. See Music and Art Therapy and Cognitive Stimulation Therapy.

How to help

The Alzheimer's Society suggests the most helpful approach is to support the person to stay as active as possible and to help keep their confidence up. Its tips include:

The NHS suggests reassuring the person that an outing will be straightforward, explaining clearly where you're going and who'll be there, and choosing simpler or smaller social occasions.

Look after yourself, too

Caring every day for someone who doesn't seem to mind what happens can be lonely and draining. The Alzheimer's Society recognizes that apathy puts a real strain on families. Talk to other caregivers, take breaks, and get support. See Caregiver Stress and Burnout and Respite Care. In the US, the Alzheimer's Association 24/7 Helpline is 800-272-3900.

Common questions

Why has my loved one with dementia lost interest in everything?

This is often apathy. The Alzheimer's Society says it can come from brain changes affecting motivation, or from losing confidence after everyday tasks become harder. Most people with dementia develop some apathy, especially in the later stage.

What's the difference between apathy and depression in dementia?

Both can involve losing interest and energy. The Alzheimer's Society says the main difference is that depression includes negative feelings like sadness or guilt, while a person with apathy may not be bothered by their symptoms. Ask the doctor to assess them, because depression can often be treated.

Is there medicine for apathy in dementia?

A 2018 Cochrane review found no therapies proven to treat apathy in Alzheimer's, and the Alzheimer's Society says it is very difficult to treat with medicines. Talk to the doctor about options; non-drug approaches such as meaningful activities, routines and music or art therapy are usually tried first.

How can I motivate someone with dementia who has apathy?

Keep a simple routine, offer activities they can succeed at, break tasks into small steps, do things with them rather than for them, and praise effort. Don't blame them; apathy is not a choice.

The bottom line

Apathy is a loss of motivation, not laziness, and it's one of the most common changes in dementia. It overlaps with depression, so ask the doctor to check. Medicines have little proven benefit, so gentle routines, achievable activities, encouragement and doing things together are the main tools. And remember to look after yourself as well.

Sources

  1. Alzheimer's Society (UK): Apathy and dementia
  2. Alzheimer's Society (UK): When the motivation is gone: supporting a person with dementia who has apathy
  3. NHS: Coping with dementia behaviour changes
  4. Alzheimer's & Dementia (2017): Lanctôt KL et al., Apathy associated with neurocognitive disorders: recent progress and future directions
  5. Cochrane Database of Systematic Reviews (2018): Ruthirakuhan MT et al., Pharmacological interventions for apathy in Alzheimer's disease

Not medical advice. This article is general information, not a diagnosis or treatment plan for any individual. Talk with a doctor about your situation.

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